Intensive and Critical Care Nursing
Volume 25, Issue 3 , Pages 111-119 , June 2009

Close relatives’ experiences of caring and of the physical environment when a loved one dies in an ICU

,Accepted 11 November 2008.

References 

  1. Abbott KH, Sago JG, Breen CM, Abernethy AP, Tulsky JA. Families looking back: one year after discussion of withdrawal or withholding of life-sustaining support. Crit Care Med. 2001;29:197–201
  2. Buchman TG, Ray SE, Wax ML, Cassell J, Rich D, Niemczycki MA. Families’ perceptions of surgical intensive care. J Am Coll Surg. 2003;196:977–983
  3. Berns R, Colvin ER. The final story: events at the bedside of dying patients as told by survivors. ANNA J. 1998;25:583–587
  4. Eggenberger SK, Nelms TP. Being family: the family experience when an adult member is hospitalized with a critical illness. J Clin Nurs. 2007;16:1618–1628
  5. Engström Å. A wish to be near. Experiences of close relatives within intensive care from the perspective of close relatives, formerly critically ill people and critical care nurses (dissertation). Luleå: Luleå University of Technology, Department of Health Science, Division of Nursing; 2008.
  6. Engström Å, Andersson S, Söderberg S. Re-visiting the ICU experiences of follow-up visits to an ICU after discharge: a qualitative study. Intens Crit Care Nurs. 2008;24:233–241
  7. Fridh I, Forsberg A, Bergbom I. Family presence and environmental factors at the time of a patient's death in an ICU. Acta Anaesthesiol Scand. 2007;51:395–401
  8. Heyland DK, Rocker GM, O’Callaghan CJ, Dodek PM, Cook DJ Dying in the ICU. Perspectives of family members. Chest. 2003;124:392–397
  9. Kirchhoff KT, Walker L, Hutton A, Spuhler V, Vaughan Cole B, Clemmer T. The vortex: families’ experiences with death in the intensive care unit. Am J Crit Care. 2002;11:200–209
  10. Levy MM. A view from the other side. Crit Care Med. 2007;35:603–604
  11. Levy MM, McBride DL. End-of-life care in the intensive care unit: state of the art in 2006. Crit Care Med. 2006;34(Suppl.):S306–S308
  12. Lincoln YS, Guba EG. Naturalistic inquiry. Beverley Hills: Sage; 1985;
  13. Lindseth A, Norberg A. A phenomenological hermeneutical method for researching lived experience. Scand J Caring Sci. 2004;18:145–153
  14. Morse JM, Barrett M, Mayan M, Olson K, Spiers J. Verification strategies for establishing reliability and validity in qualitative research. Int J Qual Met. 2002;1(2):1–19
  15. Ricoeur P. Interpretation theory: discourse and the surplus of meaning. Fort Worth: Texas Christian University Press; 1976;
  16. Ricoeur P. Oneself as another. Chicago and London: The University of Chicago Press; 1992;
  17. Rocker GM, Heyland DK, Cook DJ, Dodek PM, Kutsogiannis DJ, O’Callaghan CJ. Most critically ill patients are perceived to die in comfort during withdrawal of life support: a Canadian multicentre study. Can J Anesth. 2004;51:623–630
  18. Teno JM, Clarridge BR, Casey V, Welch LC, Wetle T, Shield R, et al. Family perspectives on end-of-life care at the last place of care. JAMA. 2004;291:88–93
  19. Troug RD, Cist AFM, Brackett SE, Burns JP, Curley MAQ, Danis M, et al. Recommendations for end-of-life care in the intensive care unit: the ethics committee of the Society of critical care medicine. Crit Care Med. 2001;29:2332–2348
  20. Van Horn ER, Kautz D. Promotion of family integrity in the acute care setting. A review of the literature. Dimens Crit Care Nurs. 2007;26:101–107
  21. Wall RJ, Curtis JR, Cooke CR, Engelberg RA. Family satisfaction in the ICU: differences between families of survivors and nonsurvivors. Chest. 2007;132:1425–1433
  22. Warren NA. Critical care family members’ satisfaction with bereavement experiences. Crit Care Nurs Q. 2002;25:54–60
  23. Wiegand DL. Withdrawal of life-sustaining therapy after sudden, unexpected life-threatening illness or injury: interactions between patients’ families, healthcare providers, and the healthcare system. Am J Crit Care. 2006;15:178–187
  24. Wilkin K, Slevin E. The meaning of caring to nurses: an investigation into the nature of caring work in an intensive care unit. Clin Nurs. 2004;13:50–59

PII: S0964-3397(08)00115-8

doi: 10.1016/j.iccn.2008.11.002

Intensive and Critical Care Nursing
Volume 25, Issue 3 , Pages 111-119 , June 2009