Intensive and Critical Care Nursing
Volume 24, Issue 3 , Pages 162-170 , June 2008

Caring for critically ill patients with advanced COPD at the end of life: A qualitative study

  • Donna Goodridge

      Affiliations

    • College of Nursing, University of Saskatchewan, 107 Wiggins Road, Saskatoon, Saskatchewan, Canada S7T 5E5
    • Corresponding Author InformationCorresponding author. Tel.: +1 306 966 1478; fax: +1 306 966 6703.
  • ,
  • Wendy Duggleby

      Affiliations

    • College of Nursing, University of Saskatchewan, 107 Wiggins Road, Saskatoon, Saskatchewan, Canada S7T 5E5
    • Tel.: +1 306 966 6237; fax: +1 306 966 6703.
  • ,
  • John Gjevre

      Affiliations

    • Division of Respiratory and Critical Care Medicine, Department of Medicine, University of Saskatchewan Royal University Hospital, 103 Hospital Drive, Saskatoon, Saskatchewan, Canada S7N 0W8
    • Tel.: +1 306 966 8274; fax +1 306 966 8694.
  • ,
  • Donna Rennie

      Affiliations

    • College of Nursing, University of Saskatchewan, 107 Wiggins Road, Saskatoon, Saskatchewan, Canada S7T 5E5
    • Tel.: +1 306 966 6234; fax: +1 306 966 6703.

,Accepted 12 January 2008.

References 

  1. Asch DA, Shea JA, Jedrziewski MK, Bosk CL. The limits of suffering: critical nurses’ views of hospital care at the end of life. Soc Sci Med. 1997;45:1661–1668
  2. Badger JM. Factors that enable or complicate end-of-life care transitions in critical care. Am J Crit Care. 2005;14:513–521
  3. Bailey P, Colella T, Mossey S. COPD—intuition or template: nurses’ stories of acute exacerbations of chronic obstructive pulmonary disease. J Clin Nurs. 2004;13:756–764
  4. Beckstrand RL, Kirchhoff KT. Providing end-of-life care to patients: critical care nurses’ perceived obstacles and supportive behaviors. Am J Crit Care. 2005;14:395–403
  5. Bergbom-Engberg I, Haljamae H. Assessment of patients’ experience of discomforts during respirator therapy. Crit Care Med. 1989;17:1068–1072
  6. Booker R. Life in the COPD straitjacket: improving the lives of sufferers. Br J Nurs. 2003;12:1061–1063
  7. Boyle DK, Miller PA, Forbes-Thompson SA. Communication and end-of-life care in the intensive care unit: patient, family and clinician outcomes. Crit Care Nurs Q. 2005;28:302–316
  8. Campbell ML. End of life care in the ICU: current practice and future hopes. Crit Care Nurs Clin N Am. 2002;14:197–200
  9. Carlet J, Thijs LG, Antonelli M, Cassell J, Cox P, Hill N, et al. Challenges in end-of-life care in the ICU: statement of the 5th international consensus conference in critical care. Intens Care Med. 2004;30:770–784
  10. Clarke EB, Curtis JR, Luce JM, Levy M, Danis M, Nelson J, et al. for the Robert Wood Johnson Foundation Critical Care End-of-Life Peer Workgroup Members Quality indicators for end of life care in the intensive care unit. Crit Care Med. 2003;31:2255–2261
  11. Connors AF, Dawson NV, Desbiens NA, Fulkerson WJ, Goldman L, Harrell FE. A controlled trial to improve care for seriously ill hospitalized patients. JAMA. 1995;274:1591–1598
  12. Curtis JR. Communicating about end-of-life care with patients and families in the intensive care unit. Crit Care Clin. 2004;20:363–380
  13. Gries M, Fernsler J. Patient perceptions of the mechanical ventilation experience. Foc Crit Care. 1988;15:52–59
  14. Groenewegen KH, Schols AMWJ, Wouters EFM. Mortality and mortality-related factors after hospitalization for acute exacerbation of COPD. Chest. 2003;124:459–467
  15. Gruenberg DA, Shelton W, Rose SL, Rutter AE, Socaris S, McGee G. Factors influencing the length of stay in the intensive care unit. Am J Crit Care. 2006;15:502–509
  16. Hansen-Flaschen J. Chronic obstructive pulmonary disease: the last year of life. Respir Care. 2004;49:90–98
  17. Hawryluck LA, Harvey WRC. Analgesia, virtue and the principle of double effect. J Pall Care. 2000;16:S24–S30
  18. Hawryluck LA, Harvey WRC, Lemieux-Charles L, Singer PA. Consensus guidelines on analgesia and sedation in dying intensive care unit patients. BMC Medical Ethics 2002. Accessed May 23, 2007 at http://www.biomedcentral.com/1472-6939/3/3.
  19. Hupcey JE. Feeling safe: the psychosocial needs of ICU patients. J Nurs Schol. 2000;32:361–367
  20. Hurd S. The impact of COPD on lung health worldwide: epidemiology and incidence. Chest. 2000;117:1S–4S
  21. Hurel D, Loirat P, Saulnier F, Nicolas F, Brivet F. Quality of life 6 months after intensive care: results of a prospective multicenter study using a generic health status scale and a satisfaction scale. Int Care Med. 1997;23:331–337
  22. Johnson P, St. John W, Moyle W. Long-term mechanical ventilation in a critical care unit: existing in an uneveryday world. J Adv Nurs. 2006;53:551–558
  23. Jones C, Griffiths R, Humphris G. Disturbed memory and amnesia related to intensive care. Memory. 2000;8:79–94
  24. Kirchhoff KT, Spuhler V, Walker L, Hutton A, Cole BV, Clemmer T. Intensive care nurses’ experience with end-of-life care. Am J Crit Care. 2000;9:36–42
  25. Krueger R. Focus groups: a practical guide for applied research. second ed.. Thousand Oaks, CA: Sage; 1994;
  26. Larson JL, Ahijevych K, Gift A, Hoffman L, Janson SL, Lanuza DM, et al. on behalf of the ATS Nursing Research Priorities Subcommittee American Thoracic Society Statement on research priorities in respiratory nursing. Am J Respir Crit Care Med. 2006;174:471–478
  27. Lilly CM, DeMeo DL, Sonna LA, Haley KJ, Massaro AF, Wallace RF, et al. An intensive communication intervention for the critically ill. Am J Med. 2000;109:469–475
  28. MacIntyre NR, Epstein SK, Carson S, Scheinhorn D, Christopher K, Muldoon S. Management of patients requiring prolonged mechanical ventilation: report of a NAMDRC consensus conference. Chest. 2005;128:3937–3954
  29. McGuire B, Basten C, Ryan C, Gallagher J. Intensive care unit syndrome: a dangerous misnomer. Arch Int Med. 2000;160:906–909
  30. Mularski RA, Osborne ME. End-of-life care in the critically ill geriatric population. Crit Care Clin. 2003;19:789–810
  31. Murtagh FEM, Preston M, Higginson I. Patterns of dying: palliative care for non-malignant disease. Clin Med. 2004;4:39–44
  32. Nelson J, Meier D, Litke A, Natale D, Seigel R, Morrison RS. The symptom burden of chronic critical illness. Crit Care Med. 2004;32:1527–1534
  33. Nevins ML, Epstein SK. Predictors of outcome for patients with COPD requiring invasive mechanical ventilation. Chest. 2001;119:1840–1849
  34. Norton SA, Talerico KA. Facilitating end-of-life decision-making: strategies for communicating and assessing. J Ger Nurs. 2000;26:6–13
  35. Norton SA, Bowers BJ. Working towards consensus: providers’ strategies to shift patients from curative to palliative treatment choices. Res Nurs Health. 2001;24:258–269
  36. Patton MQ. Qualitative research & evaluation methods. third ed.. Thousand Oaks, CA: Sage; 2002;
  37. Plant PK, Owen JL, Elliott MW. Early use of non-invasive ventilation for acute exacerbations of chronic obstructive pulmonary disease on general respiratory wards: a multicenter randomized controlled trial. Lancet. 2000;104:1222–1229
  38. Prendergast TJ, Luce JM. Increasing incidence of withholding and withdrawal of life support from the critically ill. Am J Respir Crit Care Med. 1997;155:15–20
  39. Puntillo KA, Benner P, Drought T, Drew B, Stotts N, Stannard D, et al. End-of-life issues in intensive care units: a national random survey of nurses’ knowledge and beliefs. Am J Crit Care. 2001;10:216–229
  40. Quinnell TG, Pilsworth S, Shneerson JM, Smith IE. Prolonged invasive ventilation following acute ventilatory failure in COPD. Chest. 2006;129:133–139
  41. Seneff MG, Wagner DP, Wagner RP, Zimmerman JE, Knaus WA. Hospital and 1-year survival of patients admitted to intensive care units with acute exacerbation of chronic obstructive pulmonary disease. JAMA. 1995;274:1852–1857
  42. Seymour J. Critical moments—death and dying in intensive care. Philadelphia: Open University Press; 2001;
  43. Simmonds AL. Decision-making by default: experiences of nurses and physicians with dying patients in intensive care. Hum Health Care Int. 1996;12:168–172
  44. Solomon MZ, O’Donnell L, Jennings B, Guilfoy V, Wolf SM, Nolan K, et al. Decisions near the end of life: views on life-sustaining treatments. Am J Public Health. 1993;83:14–23
  45. Studdert DM, Mello MM, Burns JP, Puopolo AL, Galper BZ, Truog RD, et al. Conflict in the care of patients with prolonged stay in the ICU: types, sources and predictors. Intens Care Med. 2003;29:1489–1497
  46. Todres L, Fullbrook P, Albarran J. On the receiving end: a hermeneutic-phenomenological analysis of a patient's struggle to cope while going through intensive care. Nurs Crit Care. 2000;5:277–287
  47. Truog RD, Cist AFM, Brackett SE, Burns JP, Curley MAQ, Danis M, et al. Recommendations for end-of-life care in the intensive care unit: The Ethics Committee of the Society of Critical Care Medicine. Crit Care Med. 2001;29:2332–2348
  48. Walters AJ. A Heideggerian hermeneutic study of the practice of critical care nurses. J Adv Nurs. 1995;21:492–497
  49. Wong DT, Gomez M, McGuire GP, Kavangh B. Utilization of intensive care unit days in a Canadian medical-surgical intensive care unit. Crit Care Med. 1999;27:1319–1324
  50. Wunderlich R, Perry A, Lavin MA, Katz B. Patients’ perceptions of uncertainty and stress during weaning from mechanical ventilation. Dim Crit Care Nurs. 1999;18:2–10

PII: S0964-3397(08)00006-2

doi: 10.1016/j.iccn.2008.01.002

Intensive and Critical Care Nursing
Volume 24, Issue 3 , Pages 162-170 , June 2008